Well, I do plenty of research/reading. I do not assume that any doctor’s word is gospel. After 4 years of ineffective treatment, I correctly diagnosed my own rare neurological condition and sought appropriate care. I needed antiepileptic drugs and brain surgery (not painkillers and antihistamines, as had been previously prescribed). But I am not an idiot. I know when I’m right and when I could be wrong. And I’m smart enough to know not to delve beyond my league.
I had a very similar experience. It becomes more pronounced when the condition - such as mine and yours (though they are different, they are both neurological) - are rare and not well documented. In my case, it was only recently discovered through genetic research. There are hardly any medical professionals who know anything at all about it.
Good for you, but I would bet there are thousands of instances of just the opposite for each one like you. There will always be that very rare case that most physicians have not yet heard of much less seen.
People like this will then tell you with a straight face that they "did their own research."
In Michael Scott's voice (The Office)" That's what she said!".
What my younger sister, a trump supporter, anti-vaxx, Covid long haul survivor says when confronted with actual research.
I cannot break through a wall of obstinance that was way more durable than the physical wall the orange one built.
If it's any consolation, I think there are very few families in America that don't have impenetratably brainwashed members.
Just last week I told my doctor that I no longer use that phrase because it’s so tainted by the stupid. I now say “I’ve been reading . . .”
"From what I've read. . ."
Well, I do plenty of research/reading. I do not assume that any doctor’s word is gospel. After 4 years of ineffective treatment, I correctly diagnosed my own rare neurological condition and sought appropriate care. I needed antiepileptic drugs and brain surgery (not painkillers and antihistamines, as had been previously prescribed). But I am not an idiot. I know when I’m right and when I could be wrong. And I’m smart enough to know not to delve beyond my league.
I had a very similar experience. It becomes more pronounced when the condition - such as mine and yours (though they are different, they are both neurological) - are rare and not well documented. In my case, it was only recently discovered through genetic research. There are hardly any medical professionals who know anything at all about it.
Good for you, but I would bet there are thousands of instances of just the opposite for each one like you. There will always be that very rare case that most physicians have not yet heard of much less seen.