The 26-year-old Ohioan has not let his rare genetic condition prevent him from having a rich life. But Trump’s second administration is creating new risks to his fragile health.
Want to make a difference for those with Epidermolysis Bullosa?
Visit Doggie’s Friends to support Shane’s charity.
Visit the website of the EB Research Partnership, and check out this appeal for support from Jill and Ed Vedder.
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